Trikafta: Day 8- Changes still happening

I am so exhausted. The abdominal pain and the sinus pain are detracting from the awesomeness of this drug. Lungs feel much better today as I didn’t skip my meds this morning. That was a dumb ass move. I have minutes when the pain lets up and then hours when it doesn’t. I know its growing pains literally.

The highlight of my day was a nice long walk along the train tracks. It was truly a metaphor for my life. I’m in good hands both from my docs and God. I know I will persevere, always have. I’m looking forward to my new life.

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