Trikafta: Day 8- Changes still happening

I am so exhausted. The abdominal pain and the sinus pain are detracting from the awesomeness of this drug. Lungs feel much better today as I didn’t skip my meds this morning. That was a dumb ass move. I have minutes when the pain lets up and then hours when it doesn’t. I know its growing pains literally.

The highlight of my day was a nice long walk along the train tracks. It was truly a metaphor for my life. I’m in good hands both from my docs and God. I know I will persevere, always have. I’m looking forward to my new life.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s