Without our health we have nothing.
So, last night before bed I headed upstairs for a shower and did not use my oxygen. I had little shortness of breath and recovered quite quickly. It was great. Is this monumental, no. I’ve had good days where I was able to climb one set of stairs pre-trikafta and be ok. It’s been a […]
MoreOk so my night was uneventful and that’s ok. I took my morning dose and so far I have not grown a tail or anything like that. About 90 minutes in I had a cough, a cough unlike my normal cough. This cough was easy and it brought up a big chunk of lung junk. […]
MoreOn Monday evening, October 18, the start of the start of my life will begin…maybe. I am getting access to a miracle drug created for people with cystic fibrosis. It has eradicated the disease from the lives of those with mild disease and it has rescued those with moderate to severe disease. It.is.a.game.changer.100% So by […]
MoreWell what a week+. At my last clinic I asked my doc to refer me to an ENT (Ear, Nose and Throat) specialist to look at my sinuses. The reason is because I have had nasal polyps my whole life and i felt like the ones I chronically have growing back were getting bigger, to […]
MoreYesterday was such a crappy day mentally for me. I feel better and have shifted my negative thoughts to positive ones, well, at least non-negative ones. It’s a dreary day today. We Calgarians are very fortunate in that we have over 300 days of sunshine each year. It could be -40C but the sun would […]
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