Trikafta: Day 6- No Pain No Gain
Ok so the sinus pain is diabolical. Even on massive pain meds it’s still nauseating. Doc says it’s either the mucocele sitting on optic nerve is expanding or contracting and both are super painful. I’m hoping it’s contracting and maybe disappears. Ha not likely. It may shrink…maybe. So other than being sidelined with this pain, […]More
Trikafta: day 5- Ups and downs
So my last night was exhausting, Cali had some stomach issues and she wouldn’t settle down. She would hop off the bed, pace around the house and then come and put her face in mine. This usually means her anal glands are full. So from 3 am – 7 am we tried expressing the glands […]More
Trikafta Day 3: I am living in an alternate universe.
I feel like I was blind and now I can see. It’s the most meaningful pivot of my life. It’s astounding, astonishing, amazing, beautiful, shocking, unbelievable, overwhelming, motivating, mind-boggling, staggering, startling, unexpected, awesome, fascinating, marvellous, and truly incredible. I’m running out of words to describe this shift in my health. I did about a weeks […]More